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View Full Version : Lyme as a Motor Neuron disease


m12414
11-07-2010, 11:26 PM
Lyme as a Motor Neuron disease (http://sci.tech-archive.net/Archive/sci.med.diseases.lyme/2006-03/msg00217.html)

This is an interesting case. I wish I was so lucky!

ruth9579
11-08-2010, 12:20 AM
if only it could be for all

heidi12257
11-08-2010, 12:49 AM
I've heard of two people: one diagnosed several years ago with ALS who turned out to have Lyme disease and who is now almost fully recovered and another woman who lives in my town who was diagnosed with ALS 5 years ago by the same neurologist and clinic as I was just 6 months ago. This woman has tested positive for Lyme disease at 3 separate clinics (I guess it can be very difficult to detect). I'm going to meet her this weekend for the first time - she is now on a course of antibiotics. I'll be seeing my neurologist next week and discussing he issue at length... I've never hoped for an illness before, but like all of us, I'm looking for an alternative to ALS!

Cheers all - I'll keep you posted!
Heidi

juliette11095
11-08-2010, 07:28 AM
Good luck to you Heidi. My Tom has been deteriorating for 10 years but is now on the meds for leptospirosis, a mouse disease the lyme doctor found AND meds for Lyme, (can't get a positive on lyme) and I think is now too weak to have started the antibiotics. They are making him very sick.
Keep your strength up, eat lots because it will go out as fast as you can put it in and THINK POSITIVE. This will be your body's best armour.

mike12803
11-08-2010, 05:29 PM
i;ve heard a few cases too]
sadly very few improve

m12414
11-08-2010, 09:35 PM
ceftriaxone (rocephin) seems to be the drug of choice for many lyme patients. it is also being tested for als. I have been on it for 6 months and have noticed a big improvement in my lyme symptoms. not so sure about the als progression, i'm getting weaker in some areas.

mike12803
11-09-2010, 09:17 AM
abx took away my joint pain, stopped m7y bowel incontinence and reduced my brain lesions by half
als sx worse
good luck

maryam13144
12-19-2010, 03:17 PM
Hi i m maryam from pakistan.my mother 53 yrs old diagnosd ALS in 2009.in 2008 july 1st symptom was foot drop in rt leg weakness then progresd to whole body in 2 yrs.now her condition is she is not able to walk,no power in whole body,cant talk,swallow wid gr8 difficulty,rapid breathing,unable to sit.having muscle wasting in whole body.dripling of saliva,choking on liquids,muscle jumping in whole body.swollen glands,unexplaind fever,sore throad,headache,neck pain and craks and so much pain in both arms.taking pain killers 4 last 3 months but not responsive.now i want to know in wat category she falls.i also want to know any medicine 4 hr arm pain.

heidi12257
12-22-2010, 01:27 AM
Hi Maryam... Lyme disease is different than ALS in many ways, but oddly, most people with ALS (and MS and Parkinson's disease too) test positive for Lyme. Has you mother been tested for Lyme disease? If so, there are treatments - with results better in the early stages. It's difficult to diagnose and can imitate other illnesses, but until you know what you are up against, there isn't much you can do. I have some arm pain too, but only when they are stressed in the shoulder joints - sleeping on them hurts as does putting my arms through the sleeves of a jacket. Your mother's pain sounds much worse and I don't know what to tell you, other than to see your doctor or Ayurvedic practitioner.

My best wishes are with you and your mother. She is fortunate to have you with her - your love and care for her shines through your anguish.
Be strong for her, and take care of yourself too.
Heidi

michelle13070
12-22-2010, 10:56 AM
Good luck on that Chameleon! Hoping for the best for you.....

maryam13144
12-22-2010, 02:00 PM
thanx alot heidi for ur love and care.i want to know ur complete symptoms and ur treatment can u tell me which u r getting?

heidi12257
12-28-2010, 08:06 PM
Hi Maryam-

Rather than telling you what I am taking, I suggest that you see a Lyme specialist....it's tricky to diagnose from what I understand and you can do yourself more harm than good by trying to take supplements that you think might help.

Emotional trauma, heavy metals and microbial pathogens ALL need to be dealt with, and treated in concert. Finding a "Lyme-literate" doctor or naturopath will be the first step to take. Good luck to you...!

Cheers-
Heidi