Patricia condemned to life of hell as NHS refuse to recognise Lyme disease

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lymegreen

Well-known member
EIGHT years ago Patricia O’Conner was a typical 20 year old, living life to the full and enjoying an active, care-free social life.

But soon after a walk with friends through Richmond and Hampton in 2008, the young Farnham woman’s health quickly deteriorated and her life began to unravel.

Now 28 years old, Patricia spends most of her days indoors with the curtains closed, suffering severe light and noise sensitivity and near-constant fatigue.

These debilitating symptoms are painfully familiar to thousands of sufferers of the typically tick-borne bacterial infection Lyme disease across the world.

However, despite two positive blood tests from specialist private clinics confirming she has Lyme, the NHS is yet to formally diagnose Patricia with the disease and she has been forced to shell out thousands of pounds on private treatment.

Driven by desperation, she has now added her voice to the growing calls for the NHS to review its approach to Lyme disease and is keen to raise awareness of the debilitating disease.
If you do want to read the full article just search for the subject line in your preferred search engine.

This case is from the UK, it seems like there are a number of countries out there that simply refuse to recognize Lyme Disease as a legitimate thing!
 

nytegeek

Member
It may also be a case of the agency not wanting to pay what it would cost to recognize and treat the disease. This kind of thing happens all to often in nationalized medicine and in many cases as well as nations it takes intervention of courts to force the hand of reluctant agencies.
 

lymegreen

Well-known member
It may also be a case of the agency not wanting to pay what it would cost to recognize and treat the disease. This kind of thing happens all to often in nationalized medicine and in many cases as well as nations it takes intervention of courts to force the hand of reluctant agencies.
Sad to think that's the case, that it's monetary based - but I have no doubt that in some places that attitude would absolutely exist :(

Makes it so much harder for those who are suffering.
 

zerthi

Active member
It may also be a case of the agency not wanting to pay what it would cost to recognize and treat the disease. This kind of thing happens all to often in nationalized medicine and in many cases as well as nations it takes intervention of courts to force the hand of reluctant agencies.
Agreed, not everything is joy and happiness with subvencioned "Universal" medical care. With nationalized you're giving out all the power in regards of decisions to
a national institution. And National Institution are not infallible, they can commit mistakes and in consequence disregards the severity of a situation.
 

pwarbi

Member
I'm from the UK and while I do think we have one of the best health services in the world, money does have a lot of influence on the NHS and hearing that it won't recognise Lyme disease doesn't come as much of a surprise to me.

I'm sure it's not the doctors or nurses that are on the front line treating patients though that make up these kind of rules, but you'll find its those that hold the purse strings and they're the ones putting money before the wellness of the patients.
 

lymegreen

Well-known member
I'm from the UK and while I do think we have one of the best health services in the world, money does have a lot of influence on the NHS and hearing that it won't recognise Lyme disease doesn't come as much of a surprise to me.

I'm sure it's not the doctors or nurses that are on the front line treating patients though that make up these kind of rules, but you'll find its those that hold the purse strings and they're the ones putting money before the wellness of the patients.
Thanks for the comment - I'm glad that we got the input of someone in the UK to get a bit of an understanding on the NHS and whether or not it would be plausible for them to not recognize Lyme!
 

pwarbi

Member
Thanks for the comment - I'm glad that we got the input of someone in the UK to get a bit of an understanding on the NHS and whether or not it would be plausible for them to not recognize Lyme!
Not only do I live in the UK, I also work for the NHS and gave done for over 10 years so I do have an understanding in how the organization works now.

With the cutbacks the government as initiated over the years, the problem is only going to get worse and worse in the future aswell, and not only will legitimate diseases refuse to be recognised, even if they are, the funds simply won't be there to research and/or treat them anyway.
 
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