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  1. bobbi4375

    Lyme Disease misdiagnosed as ALS

    I do not believe that lyme disease is misdiagnosed as ALS. My husband and I tried very hard to believe this and had the total treatment for a year. we were desperate and could not accept the ALS diagnosis. I agree with the others, it is preying on people who have a horrible and incurable...
  2. bobbi4375

    wondering about lyme disease

    my husband had the port put in and was on an IV dose along with anti fungals for 10 months. he did not slow down or stop progressing. during that 10 months He went from walking to ordering a wheelchair. sorry. they really are not the same at all.
  3. bobbi4375

    Lyme now als?

    I know all about Dr. Martz and have met him several times. Again I say, lyme symptoms do not mimic ALS. and your symptom are not ALS symptoms.
  4. bobbi4375

    Lyme now als?

    Lyme does not "mimic" ALS, though that is often said and quoted. the two diseases have a few possible symptoms that are similar, but that is all. In fact, everything that you mentioned does not have any relationship to ALS. Occasional twitching and fatigue are so vague and common , forget ALS.
  5. bobbi4375

    ALS Lyme Connection, Personal Story

    I actually believe that many of our "twitchers" on the forum need to look into Lyme. My husband was hoping, hoping he had Lyme when he was first diagnosed with ALS. He went thru the full treatment for about 18 months. alas--it is not Lyme for him but ALS. ALS is not always Lyme and Lyme...
  6. bobbi4375

    ALS Lyme Connection

    I actually believe that many of our "twitchers" on the forum need to look into Lyme. My husband was hoping, hoping he had Lyme when he was first diagnosed with ALS. He went thru the full treatment for about 18 months. alas--it is not Lyme for him but ALS. ALS is not always Lyme and Lyme...
  7. bobbi4375

    ALS/Lyme/Chiari Malformation?

    If I understand you correctly, today you looked on the internet, found some new symptom that is a sure sign of ALS called "split hand" and decided that you might have ALS? if there was a definitive test for ALS like "split hand", this is the first I have heard of it. As far as atrophy...
  8. bobbi4375

    Lyme/Chiari Malformation?

    If I understand you correctly, today you looked on the internet, found some new symptom that is a sure sign of ALS called "split hand" and decided that you might have ALS? if there was a definitive test for ALS like "split hand", this is the first I have heard of it. As far as atrophy...
  9. bobbi4375

    Lyme disease/als

    This is an age-old debate. Lyme "specialists" will try to give you hope that you can be cured of ALS by spending a boatload of money on their cure. It is not so...
  10. bobbi4375

    Lyme disease turning into ALS

    re: Curious about Lyme and symptoms This is an age-old debate. Lyme "specialists" will try to give you hope that you can be cured of ALS by spending a boatload of money on their cure. It is not so...
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