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Rami, thank you for that info regarding paraneoplastic syndrome and bulbar muscles. I admit it is something that I am concerned about due to having a pre-cancerous ovarian condition previously. I figure I will try the Valcyte ( despite some horrible sounding side effects ! ) and hope that it...

Rami, thank you for that info regarding paraneoplastic syndrome and bulbar muscles. I admit it is something that I am concerned about due to having a pre-cancerous ovarian condition previously. I figure I will try the Valcyte ( despite some horrible sounding side effects ! ) and hope that it...

As an update - my doctor phoned today and said my tests came back with a high number for HHV 6, one of the viruses he was testing for. It seems to be a virus almost everyone has had as a small child, but can reactivate, or if caught for the first time as an adult can have more serious...

As an update - my doctor phoned today and said my tests came back with a high number for HHV 6, one of the viruses he was testing for. It seems to be a virus almost everyone has had as a small child, but can reactivate, or if caught for the first time as an adult can have more serious...

Thank you for the responses ! Grateful -- I had tried to do a follow-up post, but it went to moderation -- I haven't said anything to my Doctor about ALS yet, I stumbled across the ALS symptoms while looking for easy to swallow/soft foods , and then I saw the similarities ( and the differences...

Thank you for the responses ! Grateful -- I had tried to do a follow-up post, but it went to moderation -- I haven't said anything to my Doctor about ALS yet, I stumbled across the ALS symptoms while looking for easy to swallow/soft foods , and then I saw the similarities ( and the differences...

Sorry, I forgot to ask my main question ! :roll: I found this site when I was actually searching regarding Lyme disease and noticed that there seemed to be many people on Lyme sites talking about a connection between Lyme and ALS with people being diagnosed with ALS only to discover later that...

Sorry, I forgot to ask my main question ! :roll: I found this site when I was actually searching regarding Lyme disease and noticed that there seemed to be many people on Lyme sites talking about a connection between Lyme and ALS with people being diagnosed with ALS only to discover later that...

Hello, I am nervous posting here, but I promise I think I have read all of the stickies, and hopefully am not wasting anyone's time. I know you can not diagnose people, and I am hopeful that I do not have ALS as some of my symptoms don't fit at all, however I am getting testing for multiple...

Hello, I am nervous posting here, but I promise I think I have read all of the stickies, and hopefully am not wasting anyone's time. I know you can not diagnose people, and I am hopeful that I do not have ALS as some of my symptoms don't fit at all, however I am getting testing for multiple...