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  1. nicole18361

    Lyme Disease misdiagnosed as ALS

    This is why http://www.nytimes.com/2005/08/23/health/policy/unproved-lyme-disease-tests-prompt-warnings.html http://www.cdc.gov/lyme/diagnosistesting/LabTest/OtherLab/index.html If you get a positive test do you believe it and take antibiotics. This is what we have all been telling you about...
  2. nicole18361

    Lyme Disease misdiagnosed as ALS

    Lyme is considered a mimic and a test for lyme is often done as part of the diagnostic process. But you probably refer to those who claim that many cases of ALS are Lyme. I believe that a number of people have been misled by socalled Lyme literate practitioners who claim you need a special test...
  3. nicole18361

    For any young people worrying about Other Diseases

    Re: For any young people worrying about ALS My opinion ( and I know you did not ask me) is stay away from " llmd" somehow everyone seems to get a positive test result and ends up taking lots of antibiotics - something that is not without risk.
  4. nicole18361

    For any young people worrying about Other Diseases

    Re: For any young people worrying about ALS Good luck with your recovery. Please note I suggested Lyme disease as a possibility not even 8 hours after your first post.
  5. nicole18361

    wondering about lyme disease

    Ask your neuro then. They will tell it straight. Any of them. I see Merit Cudkowicz. Who do you see?
  6. nicole18361

    wondering about lyme disease

    Some Lyme practitioners seem to find Lyme in everyone. And some antibiotics have been shown to accelerate ALS. Please make sure your doctors are top notch. Where did you get the ALS diagnosis? I go to MGH and swear by them
  7. nicole18361

    More lyme or ALS? Could I really be that unlucky?

    My ankle rolled outwards and I fell over. My aunt started exactly the same. My sister could not button a shirt. I felt nothing. Neither did my sister. Can not speak for my aunt she died long ago
  8. nicole18361

    Tired

    Your attempts at photo posting don't work and so were deleted
  9. nicole18361

    Does this sound like ALS?

    Please read this. Als untangled is dedicated to exploring various unproven theories about als and evaluating them. It seems like your symptoms could be post viral you need to follow up with a reputable physician but I agree with Mike it does not sound like ALS
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