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Re: Still wondering Good luck. Let us know how it goes.

Xstenox: like Vincent, I don't see any ALS there. Your symptoms could many things much more common, and the EMG didn't detect ALS, so that would close the door on ALS.

What makes you think you have Lyme? None of what you said has anything to do with Lyme. Please read the sticky post stuck to the top of this sub-forum that is titled "New Members Read This First Before Posting"

THESE ARE NOT SIGNS OF ALS: - dizzy, nausea, headaches - tingling, numbness in hands, feet, face, and ears. - compression fracture - passed all strength tests - pain in scrotum, rectum - digestive issues, hair loss - neck and back - unable to calm down - cramps in both legs - dent on the side...

Maybe it's not neurological. It doesn't look like ALS to me, at all. Cramps and stiffness do not diagnose ALS. Twitches can be anything. If your neurologist doesn't suspect ALS/MND, then you shouldn't either.

Lots of people, especially in the "Lyme community" are giving you really bad, ignorant information. Nothing you wrote has anything to do with ALS. You're right to be skeptical. ALS is not at all "chronic lyme" nor do ALS patients "respond well" to lyme treatment. We wish it were that easy. No...

GregK is absolutely right. Reread his post. Concerning your post: Fatigue and achy sore muscles have nothing to do with ALS. ALS involves motor nerves, not sensory nerves. The first sign of ALS is a totally paralyzed (limp) muscle that simply doesn't work anymore. It doesn't feel tired or...