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  1. 2

    ALS/LYME UPDATE, PLEASE

    Upila: I was on 20 drops twice a day in 4 oz of water. He'll need to build to that by adding one drop per day.
  2. 2

    tested positive for Lyme

    Upila: I was on 20 drops twice a day in 4 oz of water. He'll need to build to that by adding one drop per day.
  3. 2

    ALS/LYME UPDATE, PLEASE

    No improvement on the ABX. In fact I've gone downhill. I had some serious Herx on Rocephine (2 grams IV daily) last month. Got on the welchol and that backed off. I'm shopping for a LLMD in my area. Doing Samento in the mean time. I was tested for 5 co-infections early this week. Should get...
  4. 2

    tested positive for Lyme

    No improvement on the ABX. In fact I've gone downhill. I had some serious Herx on Rocephine (2 grams IV daily) last month. Got on the welchol and that backed off. I'm shopping for a LLMD in my area. Doing Samento in the mean time. I was tested for 5 co-infections early this week. Should get...
  5. 2

    ALS/LYME UPDATE, PLEASE

    upila I lost a ton of weight on 2.5 months of ABX. I'm cheating on the sugar thing and having a milk shake with a protein supplement once a day. That has stabilized my weight. I've got a new one ordered that will double the calories. Most days I take Threelac which adds the good bugs to my gut.
  6. 2

    tested positive for Lyme

    upila I lost a ton of weight on 2.5 months of ABX. I'm cheating on the sugar thing and having a milk shake with a protein supplement once a day. That has stabilized my weight. I've got a new one ordered that will double the calories. Most days I take Threelac which adds the good bugs to my gut.
  7. 2

    Lyme and ALS, what to do when symptoms atypical?

    Lily: I'm on abx for Lyme. I've noticed some hand weakness and increased fatigue since being on the abx. There are 5 or 6 of us who were diagnosed ALS and have since tested positive for Lyme. The more we talk about our symptoms and Herx's I think the better we'll all be. We gain hope and...
  8. 2

    Connection Between ALS and Lyme disease?

    Dana: Look into Welchol. When I take 2 doses twice a day the Herx are minor the following day. If not then I'm miserable. It takes about 3 weeks to kick in.
  9. 2

    Bitten by a tick a month before

    Dana: Look into Welchol. When I take 2 doses twice a day the Herx are minor the following day. If not then I'm miserable. It takes about 3 weeks to kick in.
  10. 2

    Connection Between ALS and Lyme disease?

    Dana: An update on my treatments with IV Rocephine. Overall, I feel a little worse than before I started. I sleep a lot more than usual. I feel fatigued a lot. Occasionally I'll have a day where I feel great. I'm getting a liter IV of Vitamin C every week and a shot of B12. The welchol is...
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