Recent content by wright4499

  1. wright4499

    Need some advice on ALS/Lyme/Mold..Hopin al and wright will give wisdom

    The reason your neuro is confident that you don't have ALS, is because the EMG indicates you don't have it. You have said previously that you have slowed conduction (which indicates a loss of myelin) and slowed conduction does not happen with ALS (it might be seen in later stages of ALS but not...
  2. wright4499

    Lymes test double positive for a flaming infection

    The reason your neuro is confident that you don't have ALS, is because the EMG indicates you don't have it. You have said previously that you have slowed conduction (which indicates a loss of myelin) and slowed conduction does not happen with ALS (it might be seen in later stages of ALS but not...
  3. wright4499

    Need some advice on ALS/Lyme/Mold..Hopin al and wright will give wisdom

    Hello again Kelly Consider yourself lucky that you don't have to do IVIg (it is incredibly expensive . . . tens of thousands of dollars . . . Rocephin is a bit cheaper than that). You don't have CIDP. You have Lyme's, which is what is causing your neuro problems. Again, it sounds like you're...
  4. wright4499

    Lymes test double positive for a flaming infection

    Hello again Kelly Consider yourself lucky that you don't have to do IVIg (it is incredibly expensive . . . tens of thousands of dollars . . . Rocephin is a bit cheaper than that). You don't have CIDP. You have Lyme's, which is what is causing your neuro problems. Again, it sounds like you're...
  5. wright4499

    Need some advice on ALS/Lyme/Mold..Hopin al and wright will give wisdom

    Kelly Axonal damage simply means a peripheral neuropathy (a nerve is made-up of a bundle of axons . . . think of a nerve as a rope and the axons are the individual fibers that make-up the rope). Lyme certainly damages peripheral nerves, which is the main mechanism behind the neuro symptoms...
  6. wright4499

    Lymes test double positive for a flaming infection

    Kelly Axonal damage simply means a peripheral neuropathy (a nerve is made-up of a bundle of axons . . . think of a nerve as a rope and the axons are the individual fibers that make-up the rope). Lyme certainly damages peripheral nerves, which is the main mechanism behind the neuro symptoms...
  7. wright4499

    Need some advice on ALS/Lyme/Mold..Hopin al and wright will give wisdom

    I couldn't have put it any better myself . . . although I think I would have gone with a polar bear instead. Not even close to ALS symptoms but I'd have to say pretty darn close to Lyme's disease . . . probably because you've been diagnosed with Lyme's disease. Oh . . . AND NO . . . there is...
  8. wright4499

    Lymes test double positive for a flaming infection

    I couldn't have put it any better myself . . . although I think I would have gone with a polar bear instead. Not even close to ALS symptoms but I'd have to say pretty darn close to Lyme's disease . . . probably because you've been diagnosed with Lyme's disease. Oh . . . AND NO . . . there is...
  9. wright4499

    can lyme disease cause or trigger ALS

    Lovelily The first truly documented case of lyme disease in the U.S. was back some time in the early 1970's . . . in Lyme, Connecticut . . . BUT . . . documented cases were seen in Europe over a 100 years prior to that (it just wasn't called Lyme disease). Something or someone from Europe...
  10. wright4499

    can lyme disease cause or trigger ALS

    I just read that link. So let me get this straight: A physician has a half-ass theory . . . WITH ABSOLUTELY NO DATA TO BACK IT UP . . . that this bacteria could cause ALS . . . worries you? Well guess what: I think the combination of vanilla milk shakes and tortilla chips causes ALS. I have...
  11. wright4499

    can lyme disease cause or trigger ALS

    I know of no cases where Lyme has "turned into" ALS. Does that mean you can't get ALS? No, but your chances are no different than anyone else. It is going to take some time for your condition to get better . . . and the longer you had symptoms . . . the longer it's going to take to get...
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