How were you diagnosed? EMG? My wife has NO weakness; has slurred speech, muscle fasciculations in arms, legs.
If you are positive for Lyme I would definitely pursue that. Check web for "when ALS is Lyme".
Wife was diagnosed 12/13. Does not have weakness. Has fasciculations arms, legs; slurred speech. Still walks 2 miles, does light weights. 2 separate docs, one a "specialist" (seems to be more interested in getting her in trials). Going down the Lyme road now to see if that is a possibility...