Recent content by laurie10298

Several of the symptoms you note are either clinically confirmed or not, tongue atrophy among them. Has a physician confirmed it? If not, that's where you need to be. Floaters are either caused by vitreoretinal issues or not (takes an eye doctor to say). Dental problems belong at a dentist...

If you're being treated for Lyme, it means you're on ABX even though no test suggests that you have it -- questionable advice. As for mycoplasma, that's a known common scam, esp. in Cali, but won't litigate that here. Maybe you have CFS, (which abx won't help with) but maybe inadequate testing...

Stark, Sounds like a place to start. Just as a ruleout, I'd ask for a Lyme test since you're in an endemic area. Meanwhile, I'd look at your mattress and pillow, esp. if you sleep on your L side.

I've had Lyme and it's no picnic. It wasn't hard to "get a positive test," either. Last ms link I posted (search for that thread) reported ALS and non-ALS had same percentage of pos. Lyme tests, about 3% if I remember correctly. So the stuff you read about lots of ALS that's really Lyme doesn't...

Re: Question Did you start the drug to rule out myasthenia gravis? Which one is it? Your stories about LSU seem a little weird; have you considered a 2nd opinion [3rd, really] @ Tulane? BTW, Grumpy, don't be afraid to post one longer rather than several shorter posts, to complete the story...

There are some threads about this you can search for with study/review links. I am very sorry for your loss, Blackbird. But, MC, the theory has been tested and never proven in the slightest aspect. There is a whole profitable establishment around Lyme, that masquerades as the...

Sorry, I typed "ALS" for the second disease, instead of Lyme. Anyway, you can garner 2nd opinions on each.

MH, there was a thread on this recently and others back a ways. There are some questionable labs and clinicians in the Lyme world, some of whom have latched on to the desperation PALS have in seeking another explanation and all of whom are Internet savvy, so your 14 tubes may or may not reflect...

Re: Unsure and confused Dave, I'd see a [traditional, not a Lyme profiteer] ID and rheum to make sure their respective bloods are done and if they have any thoughts. Given the timeline, unless you've never been out of the inner boroughs, I'd ask the ID about empirical tx (doxycycline, absent...

Hanson, Having researched the IGeneX/ILADS neck of the woods fairly extensively when I had disseminated Lyme myself, (I'm not the PALS), I would not regard your lab result as conclusive evidence of Lyme, particularly if both ELISA and Western Blot were completely negative on multiple occasions...

With both Lyme and ALS in our family, I've reviewed the literature purporting to connect them. The existence of Lyme, whether best characterized as acute, chronic or contagious (you can find advocates for each) does not suggest an etiology for ALS, for which EMG/NCS results, among others, differ...

With both Lyme and ALS in our family, I've reviewed the literature purporting to connect them. The existence of Lyme, whether best characterized as acute, chronic or contagious (you can find advocates for each) does not suggest an etiology for ALS, for which EMG/NCS results, among others, differ...