Recent content by juliette11095

  1. juliette11095

    Lyme misdiagnosed as ALS

    Good luck to you Heidi. My Tom has been deteriorating for 10 years but is now on the meds for leptospirosis, a mouse disease the lyme doctor found AND meds for Lyme, (can't get a positive on lyme) and I think is now too weak to have started the antibiotics. They are making him very sick...
  2. juliette11095

    Lyme as a Motor Neuron disease

    Good luck to you Heidi. My Tom has been deteriorating for 10 years but is now on the meds for leptospirosis, a mouse disease the lyme doctor found AND meds for Lyme, (can't get a positive on lyme) and I think is now too weak to have started the antibiotics. They are making him very sick...
  3. juliette11095

    Connection Between ALS and Lyme disease?

    for Phil; In the 4 months of treatment, did you notice ANY improvements? The meds are making Tom so very sick, I don't think he will last 4 months to see any improvements.
  4. juliette11095

    Bitten by a tick a month before

    for Phil; In the 4 months of treatment, did you notice ANY improvements? The meds are making Tom so very sick, I don't think he will last 4 months to see any improvements.
  5. juliette11095

    Lyme Testing?

    news is back. They took 21 vials of blood and sent them off to the labs. Yes, we even did the western block. $600 later we have an inconclusive on lyme, but more interesting, a positive on leptospirosis. This is caused by spirochete bacteria and is transmitted through urine from small...
  6. juliette11095

    Two rashes - Lyme Testing

    news is back. They took 21 vials of blood and sent them off to the labs. Yes, we even did the western block. $600 later we have an inconclusive on lyme, but more interesting, a positive on leptospirosis. This is caused by spirochete bacteria and is transmitted through urine from small...
  7. juliette11095

    Lyme Testing?

    Oh, Kelly don't take this wrong but I hope for no such thing. I mean, I wouldn't wish ALS on anyone ever. Tom is being booked in for IGENIX. Is that the western block or should I have him ask for that?
  8. juliette11095

    Two rashes - Lyme Testing

    Oh, Kelly don't take this wrong but I hope for no such thing. I mean, I wouldn't wish ALS on anyone ever. Tom is being booked in for IGENIX. Is that the western block or should I have him ask for that?
  9. juliette11095

    Lyme Testing?

    That's a mouthfull. I remember one of our support group meetings and the interesting line the conversation was taking by the PALS. The question was "What triggered ALS for you?" All of them had some trauma just prior to the onset, one fellow stepped out of his transport truck too hard and...
  10. juliette11095

    Two rashes - Lyme Testing

    That's a mouthfull. I remember one of our support group meetings and the interesting line the conversation was taking by the PALS. The question was "What triggered ALS for you?" All of them had some trauma just prior to the onset, one fellow stepped out of his transport truck too hard and...
  11. juliette11095

    Lyme Testing?

    Hey Kelly, do you have any skin affliction? Tom has a rash that has been fairly constant in his arms and legs over the years, but now is all over his back. He is dizzy most of the time and that seems to be getting worse too. He is bulbar now which means that eating is more difficult, speech...
  12. juliette11095

    Two rashes - Lyme Testing

    Hey Kelly, do you have any skin affliction? Tom has a rash that has been fairly constant in his arms and legs over the years, but now is all over his back. He is dizzy most of the time and that seems to be getting worse too. He is bulbar now which means that eating is more difficult, speech...
  13. juliette11095

    Lyme Testing?

    I remember the "jug of juice" is IVIG. This was done at Sunnybrook, you sit in a chair for a couple of hours hooked up to IV. The rash would appear/reappear after the visit and he never felt well, and was really tired. All they talked about was G proteins. A referral to Dr. Bagdhalian for a...
  14. juliette11095

    Two rashes - Lyme Testing

    I remember the "jug of juice" is IVIG. This was done at Sunnybrook, you sit in a chair for a couple of hours hooked up to IV. The rash would appear/reappear after the visit and he never felt well, and was really tired. All they talked about was G proteins. A referral to Dr. Bagdhalian for a...
  15. juliette11095

    Lyme Testing?

    Tom is back on the Lyme bandwagon. There was a show on the TV this week where Goldhawk has picked up the banner so to speak. Tom and his mom are both running around saying "what about lyme?" I keep saying "Just pay Dr. Bagdhalian the money to get the blood test in the USA" They want me to...
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