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Old 10-31-2008, 08:19 PM #1 (permalink)
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Join Date: 2008
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Join Date: 2008
City: Richmond
State: Virginia
Country: US
Diagnosed: 10/2008
Posts: 4
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Question Lyme vs. ALS - a bit confused!

Ok, so, I spoke with my first neurologist today and got interesting news. My Lyme test is positive, but he said not to get my hopes, that he expected it would be (?).

I had a confirmed Lyme tick bite when I was about 10 or 11yo (I'm almost 28 now) when I was at summer camp. Had the bulls eye rash on my arm and everything. Went to my pediatrician about a week after returning from camp when we noticed this bite looked different from my multitude of other bug bites. I was put on antibiotics and that was the end of that. Never thought about it again, other than keeping in my head that it had happened. The rash went away and I never had a known symptom.

So now I'm being diagnosed with ALS 17 years later? Everything I'm reading is saying one can be misdiagnosed for another, but wouldn't that mean the bite would have had to have been more recent? I'm not reading anything that says antibodies would remain so many years later, especially if treated with antibiotics early enough. I guess a false-positive may be possible, but it's hard to imagine.

I don't know what I'm getting at really, just sort of trying to talk this out to organize my thoughts and see if anyone else has any ideas? I'm a little impatient in waiting for my 2nd opinion which is coming in November, and they'll probably give me more information, but I want to know now! I'm so not good at waiting. *sigh*

-Michelle
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