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Old 05-08-2015, 01:03 AM #2 (permalink)
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City: Seattle
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Posts: 12
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Default Re: wondering about lyme disease

MH, there was a thread on this recently and others back a ways. There are some questionable labs and clinicians in the Lyme world, some of whom have latched on to the desperation PALS have in seeking another explanation and all of whom are Internet savvy, so your 14 tubes may or may not reflect an actual disease process. However, you are in an area obviously known for Lyme.

IV doxycycline is not a part of any recognized Lyme treatment guidelines, and you don't mention having tried oral meds with fewer risks. If you post more on your course and symptoms, we may be better able to help you determine whether or not Lyme is a serious possibility, but in the ALS Untangled study, the percentage of PALS with positive Lyme tests (and antibodies do not equal current infection) was 3%. You can have both, and that is more likely than a misdiagnosis of ALS, but for your peace of mind should have a second opinion on the ALS, perhaps in Boston, if you haven't already. And if a clinician actually diagnosed you w/ ALS, Boston could furnish a second opinion on that as well.
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