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Old 09-13-2014, 09:35 PM #1 (permalink)
emma24405
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emma24405
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Default Does this sound like ALS?

First of all, I would like to say hello to everyone. I know my story is very long, but i need to share the whole picture to give you all an idea.

Here is my back story:
It started with my pregnancy, and light sensitivity, and a drunk/ spacey feeling that would come and go. I then miscarried, and for 3 weeks felt fine. Then one day, i woke up with the drunk feeling constantly, and the light sensitivity, and have been this way for 7 months straight, with no break in symptoms.
I saw a gastro in February who found yeast overgrowth in my stool. I thought nothing of it, i didn't even know what it was, until i started researching. He gave me nystatin, and my symptoms never changed. Started researching yeast, and was certain it was causing my issues. I went on a strict diet, and found a doctor who deals with these types of issues seems i read a lot about regular doctors who don't believe in it. She put me on nystatin/diflucan for a month, and i had no relief in symptoms.
Things i have tested for:
Thyroid-Fine
Diabetes-Negative (Although blood sugar slightly out of range)
General blood testing- Ok (neutrophils that fight bacteria 2 points out of range), overall white blood count within range
CT head scan-Normal
Food allergy testing shows no allergies
Probiotics tried (None make any difference)
Doctor has tried (Metronidazole as it can help fight certain bacteria in the body)- Makes symptoms 10x worse
Nystatin and diflucan make symptoms feel 10x worse
GP a while ago said i had a sinus infection (I don't think she knew what was wrong really, she just went off me saying i had some post nasal drip and my nose runs a bit), so she gave me ceftin- This also made my symptoms feel 10x worse.
So i am not sure if any antibiotic is making me feel worse, or these certain ones irritate whatever i have going on. So i just did a CDSA stool analysis that i heard really helps show up yeast, and what is resistant/sensitive to it. I just got the results, and it shows no yeast present in my stool, and this test took 3 different samples from different days. Now i am completely disheartened because i have no idea why i feel this way, and it is really scaring me. Does anyone know other things that can cause these issues?
I will give a quick run down of symptoms.
Constant drunk/high feeling
Light sensitivity (Not so bad outside in natural light, much worse with indoor lighting) It feels like when you first wake up and turn a lamp on, but my eyes never adjust to the light, and it is constant.
Head pressure. Also feel weird laying on my side in bed. It isn't vertigo like the room is spinning, but i just feel a little woozy when laying on either side.
Undigested food in stools
Hard pellet stools
Carbs/Sugar/Caffeine make symptoms worse
Garlic and olive oil make me feel worse?
Random itching over skin but with no rash (Sometimes mild hives are present)
Heavy feeling eyes/Sometimes feel very sleepy after food
Feel at best first thing in the morning
Sneezing sometimes/runny nose
Post nasal drip
Itchy anus/inside ears/nose
Slight runny nose sometimes
Had chronic constipation before this for 2 months
Had root canal-Had tooth removed, made no difference
GI upset- Discomfort in stomach area. Sometimes pains/nausea
Acid Reflux
Recently chronic sore throat- Hurts to swallow/Swollen lymph nodes in neck
Recently doctor told me i have a heart murmur
Had a food sensitivity test that showed no food sensitivities, but a high IgE
I am at my wits end, and i worry i have something really rare and life threatening.
I also have random body twitching all over.
The only thing the doctors found was a positive test for Epstein Barr Virus

Now i know 90 percent of these symptoms are not related to ALS symptoms, but the last part has been worrying me. I feel my hands are stiff, and i can move my hand around, but it doesn't feel relaxed. I also feel i can hold things no problem, but i have a harder time and can't hold as tight as i could before. Along with the muscle twitching, this has made me concerned. Most believe that i have lyme disease, and some other issues that go along with it, but some people in the lyme community i have spoken to believe ALS is actually chronic lyme disease. i have to admit that i myself am a bit skeptical of this, because of the decline of people with ALS, but some have stated they have read ALS patients respond to lyme treatment well, and people who were diagnosed with ALS tested positive for lyme. What are your thoughts?

Thank you for anyone who takes the time to read my story and respond.

Blessings xoxo