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Old 11-10-2005, 11:36 AM #24 (permalink)
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Default re: 33 female, witH lyme disease

kneecey53215 - my mother has seen a ton of doctors over the past year and a half. Neurologists at Columbia Presbyterian Medical Center in NYC have diagnosed her with ALS. They are one of the best neurological depts in the country. Everyone of them looked at me like I had 3 heads whenever I mentioned "could it be Lyme?" (I asked after researching ALS on the internet). I took her to a lyme specialist in NJ - she tested negative and the RECEPTIONIST called us after FOUR WEEKS to tell us. I had been told about Dr. Gregory Bach near Philadelphia months before. I finally made the appt for my Mom. We went yesterday. He believes that she has Lyme and has already started treating her. We ran into a family friend who also had an appt at the same time. He was diagnosed with ALS also. He is much further along....can barely talk and uses a walker and walks VERY SLOWLY. He has been seeing Dr. Bach for 5 weeks and has improved. On his previous visit he was in a wheelchair and could not get up out of it.

Time will tell if my Mother will improve with the antibiotics - she just started yesterday.

I don't know where your Aunt is located, but I would take her to see Dr. Bach in Colmar, PA. People come to see him from all over the world. There is nothing they can do for someone with ALS, so it is worth it to test for Lyme - especially since your Aunt was bitten by a tick. Go see Dr. BACH! Dr. Bach's wife has Lyme...she lost her hearing/sight and is now fine!

Good luck....
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