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Old 05-21-2011, 11:59 PM #9 (permalink)
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Join Date: 2010
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Join Date: 2010
City: lyme
State: ct
Country: US
Diagnosed: 02/2010
Posts: 42
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Default re: Could this by Lyme or slowly progressing ALS?

Yes, there are numerous stories of people diagnosed with ALS that respond to medication. Have you heard for Dr Martz? I am going to his clinic in CO and also to an osteopath locally. I never tested positive for lyme or any coinfections but I have all the clinical symptoms: atrophy, progessive weakness, burning skin, ear ringing, periodic fevers, flushing, total numbness in my face, hands and feet.

I was prescribed rocephin ( generic is ceftriaxone) by a lyme doctor in NY. He uses it to treat neuro lyme and it is being tested for ALS now since it seems to slow down the atrophy. I felt great while taking it, I even got stronger. Unfortunately, I developed c.diff so I'm off all meds now until that resolves.

I hope I will respond to oral drugs when I am able resume treatment. I am so weak and tired now. I would try a lyme doctor, what can it hurt? If you feel you are getting worse, just stop the drugs.
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