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Old 04-21-2011, 01:59 PM #8 (permalink)
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Join Date: 2010
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Join Date: 2010
City: central
State: ME
Country: US
Diagnosed: 09/2010
Posts: 4
sue12658 is on a distinguished road
Default re: Could this by Lyme or slowly progressing ALS?

notALS, I'm glad you are doing better.
I pursued the Lyme possibility, hopefully, for some time after diagnosis, and eventually gave up because the picture (clinical, tests, history) just didn't fit. My primary dr, our family doc for 20 years, was willing to refer me to a Lyme specialist if I wanted to go that route but did not recommend it, and she is a very open-minded Dr and would love for this not to be ALS. Now a family member, well-meaning but ..., comes along and says "I bet you have Lyme", which of course opens up that box in the back of my head, even though I was very comfortable with my carefully considered decision.
My question to you, notALS, is: do you know of good documentation of people diagnosed with ALS who have been treated for Lyme and recovered (not just done better while they are on the IV antibiotics)?
Thanks, and keep the faith.
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