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Old 11-24-2012, 11:40 PM #11 (permalink)
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City: Santa Cruz
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Default re: Curious about Lyme and symptoms

As an update - my doctor phoned today and said my tests came back with a high number for HHV 6, one of the viruses he was testing for. It seems to be a virus almost everyone has had as a small child, but can reactivate, or if caught for the first time as an adult can have more serious complications - generally a mono or chronic fatigue type - but rarely primarily CNS. He recommended I try Valcyte medication and see if it helps. He said I should be able to tell within 2-4 weeks if it makes a difference, and if it does the HHV 6 is probably the cause of my problems. Thank you so much for your feedback, and I'll check in after I try this medicine. Incidentally, he also asked if I wanted to wait for the Lyme test to come back -- but then also said this particular lab always gave some sort of positive ! So I wonder why he sent me for a $500 out of pocket test ! My husband said it's because they need test results in order to try any treatment and have it covered .. but still...
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