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Old 11-23-2012, 05:00 PM #4 (permalink)
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City: London
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Default re: Curious about Lyme and symptoms

Hi

It certainly sounds as if you have had a rough time of it, and the uncertainty about what is causing this is an added burden for you.

You may never get a definitive explanation; 'in a minority of cases there is no clear cause why the cerebellum and spinal cord become damaged as is the case with idiopathic late onset cerebellar ataxia (ILOA).' A close family member who is a doctor informs me that 'idiopathic' is doctor-speak for 'we haven't a clue what's causing this'.

On the other hand I personally would prefer that to one of the more unpleasant possible causes, and your doctor is pursuing various possibilities to rule those out. Have you raised your concerns about ALS/MND with your doctors, and if so what did they say?

I appreciate your worry about Lyme but I think you should stop worrying about it; in the end the choice as to whether to take medication is yours. No one is going to force feed you antibiotics...
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