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Old 07-10-2005, 04:16 PM #5 (permalink)
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Join Date: 2005
Posts: 15
patsy136
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Join Date: 2005
City: Kapuskasing
State: Ontario
Country: CA
Diagnosed: 09/1998
Posts: 15
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in Kapuskasing Ontario in 1995, while gardening in my backyard I got bit and a big bull's eye rash resulted! I worked public health then & since this area was deemed non-edemmic for lyme never thought of it much. I had the health inspector check my rash and said "well, since you got it in this area it can't be a tick bite. It must be a spider bite. " and since I hardly knew anything about tick bites I never thought about it again ! 4 weeks later I was hospitalized with a high grade uncontrollable fevers, nausea, vomiting, photophobia, rigors, severe headaches and stiff neck. The numerous tests came back showing an infectious process but we didn't find anything with the routine blood cultures. I was treated with broad spectrum antibiotics intravenously for 5 days.
After that episode in 1995 my energy level started to peter out and right dominant hand started twitching and cramping. We thought then that it was carpal tunnel and had no EMG! I had surgery for it and my hand got worse in spring of 1998. Started falling that year too, I rationalised it, as me being "a clutz". I had always been a clutz! Well I had fallen many times in those early years and broke my left ankle in early March 98. I was hyperreflexive, plus my gait was wide and stiff.
In June of 1998 started the neurological work up and E.M.G.'s, and the final diagnosis of Amyotrophic Lateral Sclerosis on September 1st, 1998.
It wasn't until late 1999 that I would come across the story of Pat Pepper and made the connection my bull's eye rash of 1995 and my ALS. After that, I was assessed by Dr Burrascano and tested for everything!
Since then, I have tested positive by lyme urine antigen test (LUAT) on 3 separate urine samples and 3 Western Blots at the Igenex laboratories and had other tests at the Bowen laboratories ! Even though I've had many negative western blot tests in the past Iím now positive. I have also tested positive co-infections: mycoplasma fermentins, babesia and ehrllichia. I have been successfully treated for the mycoplasma fermentins and ehrllichia, for the time being! I continue to be treated for the Lyme and babesia with supplements and the Rife machine, because the years of antibiotics have reeked havoc on my body. This of course done under the recommendations and guidance of Dr Burrascano, a top notch Lyme disease specialist!
I have to warn everyone that taking antibiotics for a long term period is very hard on your body, especially your your GI system! So therefore there are many risks, don't anybody take these risks lightly!
I believe that my ALS was triggered by Lyme, however it could that these are totally unrelated diseases and only time and research will tell!
Patsy
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