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Old 06-14-2005, 05:55 PM #22 (permalink)
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I am interested in the connection between ALS and Lyme because my mother in law had improperly treated Lyme disease. Although it took too long she was diagnosed after 6 months and treated, although not aggressively enough. At that time she was given 3 weeks of oral doxycycline. Her symptoms were rheumatological as well as cognitive, but over the next 2 years primarily were neurological. She was diagnosed with everything from dementia to strokes but had also progressive inability to swallow, speak and walk, and was finally diagnosed with ALS by a neurologist, having done all the muscle tests and other tests for ALS. Although I had taken her to two infectious disease specialists earlier requesting Lyme follow up, it was the neurologist who finally did a spinal tap, and found the "highest lyme titer" he had ever seen in cerebro spinal fluid. Sadly, her disease had progressed so far and she was unresponsive to IV antibiotic treatment. We live in the heart of Lyme country and it is sad to me that not more is known.
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