Thread: Lyme Results
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Old 07-22-2007, 08:36 PM #4 (permalink)
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City: Portland
State: Oregon
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Default Treatment/lab

Do you know what lab your Western Blot went to? Also, what antibiotics were you put on? I was clinically diagnosed last year with Lyme, but I too feel like I'm still in limbo on this. ALS/MS/Lyme were the only things that fit many of my numerous symptoms. With several clean MRIs, normal spinal tap, and abnormal EMG, seemed MS was unlikely. I tested postive on 3 bands and indeterminate on 3 bands, but officially a negative test. I'm trying antibiotic treatment one more time. Last time I tried Ceftriaxone, but I developed an allergic reaction to it before finishing the course.

I'm seeing an ALS specialist too, and she doesn't think I have ALS. She is still stumped as to why I would have the damage to my nerves (thinks it peripheral neuropathy), swallowing problems confirmed through barium swallow, head pressure, constant wooziness, loss of appetite,...list goes on. She wants me to try the antibiotics treatment from the other doctor, and if no answers or improvement in a few months, she's refering me to the Mayo Clinic. I have another EMG schedule 7/16. 3 years is a long time without a diagnosis, so I hope that your treatment is the answer you've been looking for. Keep in mind that even after killing the active infection, it still might take some time to recover from Lyme, and there maybe some lasting effects even if "cured" from the bacteria. I hope you get 100% better!
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