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Old 04-02-2005, 07:51 PM #13 (permalink)
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Join Date: 2005
Posts: 15
patsy136
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Join Date: 2005
City: Kapuskasing
State: Ontario
Country: CA
Diagnosed: 09/1998
Posts: 15
patsy136
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My lyMe disease and coinfections story.

i aM registered nurse, now retired due to the a.l.s.. My work experience was in neurosurgery i.c.u., urology, e.r., hoMe care/c.c.a.c., public health, did soMe teaching too. they used to call Me the "little french nurse with the fire up her butt" in toronto. but the fire up and went in 1995. in 1995, while gardening in My backyard i got bit and a big bull's eye rash resulted! i worked public health then & since this area was deeMed non-edeMMic for lyMe never thought of it Much. i had the health inspector check My rash and said "well, since you got it in this area it can't be a tick bite. it Must be a spider bite. " and since i hardly knew anything about tick bites i never thought about it again ! 4 weeks later i was hospitalized with a high grade uncontrollable fevers, nausea, voMiting, photophobia, rigors, severe headaches and stiff neck. the nuMerous tests caMe back showing an infectious process but we didn't find anything with the blood cultures. i was treated with broad spectruM antibiotics intravenously for 5 days.

after that episode in 1995 My energy level started to peter out and right doMinant hand started twitching and craMping. we thought then that it was carpal tunnel and had no eMg! i had surgery for it and My hand got worse in spring of 1998. started falling that year too, i rationalised it, as Me being "a clutz". i had always been a clutz! well i had fallen Many tiMes in those early years and broke My left ankle in early March 98. i was hyperreflexive, plus My gait was wide and stiff.

in june of 1998 started the neurological work up and e.M.g.'s, and the final diagnosis of aMyotrophic lateral sclerosis on septeMber 1st, 1998.

it wasn't until late 1999 that i would coMe across the story of pat pepper and Made the connection My bull's eye rash of 1995 and My als. after that, i was assessed by dr burrascano and tested for everything!

since that tiMe, 2001, i have tested positive by lyMe urine antigen test (luat) on 3 separate urine saMples and 3 western blots! even though i've had Many negative western blot tests in the past iíM now positive, through the igenex laboratory in california, u.s.a. and bowen labs; this all out of our pockets as no neurologist or infectious diseases specialist would recognize that My als could have been set off by My lyMe. i have also tested positive co-infections: MycoplasMa ferMentins, babesia and ehrllichia. this of course done under the recoMMendations and guidance of dr burrascano, a top notch lyMe disease specialist in ny, u.s.a..

i was treated for about 2 and 1/2 years for all of the above infections but the als still progresses. i have been successfully treated for the lyMe, MycoplasMa ferMentins and ehrllichia, for the tiMe being! that was 2003. i continued to be treated for babesia for another year and gave up in the spring of 2004, and never retested to see if i i still had it. i will soon get retested for the all of the above stated infections !

now i have stopped all of the antibiotics because i wanted to give My body a break. i have started doing rife Machine treatMents since last spring and don't know if they are helping or not. but despite all of the different treatMents the als continues to progress! so for Me, so far, these lyMe treatMents have nothing for My als.

patricia (patsy) seguin-treMblay
kapuskasing, ontario
canada
p.a.l.s. since 1998
p.a.l.s. = person with aMyotrophic lateral sclerosis
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