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Old 10-31-2010, 10:15 PM #4 (permalink)
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Join Date: 2010
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Join Date: 2010
City: lyme
State: ct
Country: US
Diagnosed: 02/2010
Posts: 42
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Default Re: Anyone have both ALS and Lyme?

Hi Sue,
I still don't know if my ALS is progressing or it is lyme. Initially, my strength improved alot on ceftriaxone. I never had a positive lyme test although doctors suspected it for many years and did many CDC tests.

If you want to learn more about lyme, try lymenet.org, its a great website and will answer all your questions. My arms are still as weak as when I started ceftriaxone and now my neck is weaker. I have trouble lifting up my head when I bend over. sigh.. I'm so frightened.
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