Hi,
I see Tom has had ALS for 10 years..wow..he must have a really slow progression. What is his function like right now? As far as Lyme progression goes..its a sticky but most people who test CDC positive and dont have to send their blood off to that shady lab in California, I have observed these patients to have gradual unending progression left untreated.
I myself have had Lymes going back to 2004. I have had a gradual but slow decline ever since. Beginning with chemical and food intolerance, joint pain, fatigue over the years until 2008 when I was reinfected and then a more quicker progression started with falling, dizziness, fatigue, myoclonic jerks, twitches, word finding problems, tons of cognitive problems, back and joint pain, weakness, numbness, foot drop, and now...
dirty emg with patchy denervation..brisk reflexes, drooling, tongue biting, clicking and popping of joints, and worse cognitive dysfunction..I forget peoples names constantly. But I have not gotten a break AT ALL..in progression.
I'd have to imagine the possibility that something else could be going on with Tom if he has pretty good function after 10 years however if his test come back negative for lyme and syphilis then it is very doubtful but many Lymies would argue that with me.
But I will tell ya a month of oral antibiotics are not going to touch a thing, they just made my tongue burn..the rocephin is what helps me and it doesn't make me feel bad like orals. I actually do have Lyme's verified by one of the leading infectious disease doctors and top ALS doctor in the United States and if orals didn't help me with a flaming case then they def wont help someone that is advanced into ALS.
If you have any questions, dont hesitate to ask.
Kelly