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Old 05-15-2010, 01:57 PM #26 (permalink)
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Join Date: 2009
City: Toronto
State: Ont
Country: CA
Posts: 16
rob9920 is on a distinguished road
Default Re: Need some advice on ALS/Lyme/Mold..Hopin al and wright will give wisdom

Well, from what I have read, Lyme usually doesn't affect your EMG test results a great deal, it can affect it to some degree. Since your actual test results are officially still normal, just a minor difference from one side to the other, I probably would not worry to much. And fibs are just twitches, and you have had those all along which is a common symptom of Lyme. And Lyme is an infection that gets into your CNS -> That could explain the positive test result.

From what I have seen from doctors who arn't familiar with Lyme and what symptoms it could cause. (Which is most), you could easily get spun around from Dr. to Dr. with possible diagnosis of this then that then maybe this.... I have been down that road.....


When I went to my GP a few weeks ago with my latest new symptom, he said it could be a brain tumor.... Except I already had a MRI that was normal….I look it up on Dr. Google, it could be a brain tumor, a seizure, or some sort of psychiatric disorder.... I look it up on the Lyme forum, and low and behold, it's very common with Lyme... Go see my Lime ID doctor, and he says excellent! The antibiotics are working! This is just one example.... I have several others....

P.S. I was put on Lyrica and then on Gabapentin on separate occasions from my GP. They didn't do anything for me. My ID doctor told me to get off them as they don't really help and those meds can cause you additional symptoms.... And you don't want that.... The ID Doctor will treat you for Lyme based on your symptoms.... You don't want the meds affecting the symptoms…

What does your Lyme Dr. say? And is he a well experianced Lyme Dr.? I would say one needs to have treated at least dozens if not hundreds of people with Lyme before one truley gets the grasp of this disease. And be careful of the Top ID doctor.... Ask him how many people he has treated for Lyme, because..... You do have Lyme!
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