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Old 05-15-2010, 04:50 AM #25 (permalink)
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Join Date: 2010
Posts: 71
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kelly11016 kelly11016 is offline
New Member
kelly11016's Avatar
Join Date: 2010
City: Auburn
State: Alabama
Country: US
Posts: 71
kelly11016 is on a distinguished road
Default Re: Need some advice on ALS/Lyme/Mold..Hopin al and wright will give wisdom

Guess now I'm a dirty fibber..lol

My Emg was abnormal today at Mary Free Bed. Dr. G found some fibs in my leg and arm. Ncv was normal but a significant difference between left and right side for motor and sensory nerves. My new tap showed infectious inflammation and she referred me to their top infectious disease doctor tomorrow. She said its not motor neuron disease but said its axonal damage. Whatever that means. She said I have mononeuromultiplex..?

Needing encouragement from the strongest people I know..my clinicals were good except brisk reflexes no pathological reflexes. My doc is one of the leading als specialists in the country and has worked w mnd for over 20 years..when she says no als I have to believe her..I guess I'm just down but at least she gave me gabapentin. She wrote cidp on my chart pending the antibody testing.

Love kelly
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