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Old 05-07-2010, 12:30 PM #18 (permalink)
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Join Date: 2010
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Join Date: 2010
City: Auburn
State: Alabama
Country: US
Posts: 71
kelly11016 is on a distinguished road
Default Re: Need some advice on ALS/Lyme/Mold..Hopin al and wright will give wisdom

Update after 2 months on Lyme treatment and my first follow-up visit with pathologist and neurologist:

-My twitches have almost completely subsided.
-My cold/jello leg is no more
-Reflexes have almost returned to normal
-No more herx reactions
-Hypotension has significantly improved.
-Blood pressure is stable and pulse is back to normal.
-wasting of foot pad, stiffness, and parathesia in right leg
-Vitamin D low, low lymphocytes, and low HDL cholesterol

I have been playing volleyball everyday and exercising as much as possible. I have tons more energy and feel alot better.

My follow-up with pathologist was positive except for the fact he noted that my foot pad has markedly wasted away to where now my bone is protruding which is causing pain. He said it is not lyme's related and that I can no longer go barefooted until we find out whats wrong. He advised picking up some creatine to try to build muscle back. I love going barefoot bc shoes hurt that foot now.

My neuro did a full body emg all normal except for Ulnar neuropathy at the wrist on my right arm which explains not being able to pick up my cookie the other day and ive been dropping everything.

I have a week with a neuromuscular specialist at MSU next week.

Whatever is going on Lyme has def caused it...I know CIDP and MMN has been known to associated with lyme..anybody with CIDP or MMN care to comment...I have a normal needle EMG so I think that cuts out those for me but I heard it can move very slow and only show NCV damage first.

Any help would be awesome peeps..

And to any hypochondriacs reading this....I DO NOT have ALS nor do i think I do..just a side note lol...

Hope everyone is well.
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