Thread: ALS/Lyme Help
View Single Post
Old 04-06-2010, 03:08 PM #18 (permalink)
kim6432's Avatar
kim6432 kim6432 is offline
New Member
 
Join Date: 2008
Posts: 12
kim6432 is on a distinguished road
kim6432 kim6432 is offline
New Member
kim6432's Avatar
Join Date: 2008
City: Springfield
State: Missouri
Country: US
Diagnosed: 08/2011
Posts: 12
kim6432 is on a distinguished road
Default Re: ALS/Lyme Help

New blood panels done with each and subsequent neuro visits. CPK and Sed rates were slightly elevated but not enough to point to anything. I was told it was sort of like having a 99 temperature (I never have been able to figure out how to make a degree sign via this keyboard). The slight elevation could be caused by any one of a number of things.

I could have some clonus, it was just never commented on unless interpreted by the 4's charted in reflexes. I wouldn't know it if it knocked on my door and introduced itself!

After MRI's, EMG's, NCV/s and bloodwork, 2 neuro's have the opinion this is PLS. I'll see a new neuro (#4, due to #3 having retired) next month. This is why I feel I can ask about the PNH possibility.

Regarding Babinksi, #2 said it was only lateral and #3 said it was bilateral. No other signs were noted (hoffman, jaw-jerk, etc...).

PZ
kim6432 is offline