Thread: ALS/Lyme Help
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Old 01-28-2010, 11:14 AM #1 (permalink)
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Join Date: 2009
City: Middleburg Heights
State: Ohio
Country: Uni
Diagnosed: 05/2007
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Question ALS/Lyme Help

I have looked around this forum for some time now but never posted. My husband was diagnosed 6/07. He has been confined to bed and wheelchair for over a year now. He can no longer speak or swallow. He has been on feeding tube since June 2009. He lost use of his arms/hands, he can move his legs but cannot stand. His neck muscles seem to be getting weaker also. He seldom holds his head up in the wheelchair. Extra saliva and nasal congestion are bad. Have several meds with no luck and had allergic reactions to a few. Muscle contractions and leg stiffness have been getting worse lately and making it difficult to transfer him by myself. He also was diagnosed with Lyme disease and is being treated for it also. He had improvement on IV Rocephin but when he was taken off it because of improvement he went downhill fast. Has anyone else been treated for Lyme disease mimicking ALS? I would appreciate any ones input. Thanks, Bev
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