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Good luck to you Heidi. My Tom has been deteriorating for 10 years but is now on the meds for leptospirosis, a mouse disease the lyme doctor found AND meds for Lyme, (can't get a positive on lyme) and I think is now too weak to have started the antibiotics. They are making him very sick...

Good luck to you Heidi. My Tom has been deteriorating for 10 years but is now on the meds for leptospirosis, a mouse disease the lyme doctor found AND meds for Lyme, (can't get a positive on lyme) and I think is now too weak to have started the antibiotics. They are making him very sick...

for Phil; In the 4 months of treatment, did you notice ANY improvements? The meds are making Tom so very sick, I don't think he will last 4 months to see any improvements.

for Phil; In the 4 months of treatment, did you notice ANY improvements? The meds are making Tom so very sick, I don't think he will last 4 months to see any improvements.

...gives him a burn, and he has the runs. He is still to take the rilutek for ALS. He feels sick and has no desire to do anything but sit and *****. Poor man. He says he will wait one more week and hope for improvement in how he feels or else he's gonna quit. I hope to convince him to go a...

...gives him a burn, and he has the runs. He is still to take the rilutek for ALS. He feels sick and has no desire to do anything but sit and *****. Poor man. He says he will wait one more week and hope for improvement in how he feels or else he's gonna quit. I hope to convince him to go a...

Oh, Kelly don't take this wrong but I hope for no such thing. I mean, I wouldn't wish ALS on anyone ever. Tom is being booked in for IGENIX. Is that the western block or should I have him ask for that?

Oh, Kelly don't take this wrong but I hope for no such thing. I mean, I wouldn't wish ALS on anyone ever. Tom is being booked in for IGENIX. Is that the western block or should I have him ask for that?

That's a mouthfull. I remember one of our support group meetings and the interesting line the conversation was taking by the PALS. The question was "What triggered ALS for you?" All of them had some trauma just prior to the onset, one fellow stepped out of his transport truck too hard and...

That's a mouthfull. I remember one of our support group meetings and the interesting line the conversation was taking by the PALS. The question was "What triggered ALS for you?" All of them had some trauma just prior to the onset, one fellow stepped out of his transport truck too hard and...