Recent content by marilyn25328

I see Dr. Paganoni. She is very nice. Do you do any of the trials they offer? I don't want to tire myself out too much as I could be going in and out for this and that. Mal

Hi Nikki, I also go to MGH and feel secure with them. Just reading a lot about everything. Thanks

Thanks for quick response. Helps to share whatever info is available as I don't know anyone with ALS. Finally getting around to finding these sites.

Thanks for info. Glad I found this forum.

Hi to all: my first time posting. Dx 5/2014 and been through all the neuro exams, EMG's and MRI. I have read so much about Lyme disease in connection with ALS. MY blood was neqative but I really pushed for more extensive lab test: 14 tubes of blood later, sure enough I tested positive on a...