Recent content by 1776

  1. 1

    Child with ALS? Lyme's? Mycoplasma?

    Well we chose not to go with Doxy because of concerns our doctor had with giving it in children and adverse reactions with fungal infections, of which we found a lot of mold in her blood. I think though that Doxy or Minocycline is a definite possibility as a rotating anbitiotic when the time...
  2. 1

    Child with ALS? Lyme's? Mycoplasma?

    Nope, we have not been to an ALS clinic. I recommended it to them about 14 months ago, but they pursued a pediatric neurologist, who ended up not being able to make a diagnosis. Yes, she has had 3 LPs; 2 of them showed a mild CSF-pleocytosis + a high titer for mycoplasma pneumoniae. The...
  3. 1

    Child with ALS? Lyme's? Mycoplasma?

    I’m new here, but I wanted to share some of my thoughts. It’s been almost 2 years since my niece’s symptoms began. In April, 2005, Alexandria (Alex) was playing softball, basketball, and riding horses. By December, just 8 months later, she was confined to a wheelchair. Two months later, she...
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